back to Duchenne muscular dystrophy

  1. Q.What is everyday life like? What is the quality of life? A.Every day life is hard for people with Duchenne Muscular Dystrophy because some of them dont even have enough muscle to even feed them self so they have to have people feed them, and the quality of life is very poor.
  2. Q.What limitations does the person have? A.Some limitations would be that they will have muscle weaknesses, lack of coordination, and they will slowly start to cripple and run out of muscles til they die.
  3. Q.What are some organizations that can help a family cope with a child's disorder (web links)? A.There are a lot of places like the Duchenne Muscular Dystrophy Fund and the Coopers Cure, which are trying to find a cure right now for Duchenne Muscular Dystrophy.
  4. Q.How possible is it that a cure will be found? A.There might be a cure in a while but there is no cure for it yet.

http://www.mayoclinic.com/health/muscular-dystrophy/DS00200/DSECTION=coping-and-support
http://www.dmdfund.org/
http://www.cooperscure.org/duchenneppmd.html